Kevin has passed but wanted this information to be available.
A definition ~
Amyotrophic lateral sclerosis (ALS), also referred to as Lou Gehrig’s disease, is a form of motor neuron disease caused by the degeneration of neurons located in the ventral horn of the spinal cord and the cortical neurons that provide their afferent input. The condition is often called Lou Gehrig’s disease in North America, after the famous New York Yankees baseball player who was diagnosed with the disease in 1939. The disorder is characterized by rapidly progressive weakness, muscle atrophy and fasciculations, spasticity, dysarthria, dysphagia, and respiratory compromise. Sensory function generally is spared, as is autonomic, and oculomotor activity. ALS is a progressive, fatal, neurodegenerative disease with most affected patients dying of respiratory compromise and pneumonia after 2 to 3 years; although occasional individuals have a more indolent course and survive for many years.
That pretty much says it all doesn’t it? Initially Kevin thought he could throw his will and energy at this disease and beat it with nutrition and positive energy. A great deal was learned and for extended periods he stopped the progression of the disease. His quality of life was a chief concern of Kevin’s – for himself and for those who loved and cared for him. It was ultimately the diminishing of that quality that convinced Kevin that to move on was the best thing to do.
As a friend and confidante I can tell you Kevin got the most out of his time here, right up to his last breath.